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International Public Policy Activities

The International League Against Epilepsy (ILAE) is the world's preeminent association of physicians and other health professionals working towards a world where no persons' life is limited by Epilepsy.

Epilepsy Alliance Europe

Epilepsy Alliance Europe, a not-for-profit organization established under the auspices of the ILAE and the IBE, has launched a new website, EpilepsyAllianceEurope.org.

Read more about the organization and the website in the October 2016 newsletter


International Epilepsy Day

An international day to help raise awareness and educate the public on the facts about epilepsy, and the urgent need for improved treatment and care and greater investment in research. www.epilepsy.org.


World Brain Day July 22, 2015

World Brain Day July 22 2015

The World Federation of Neurology, the International League Against Epilepsy (ILAE), the International Bureau for Epilepsy (IBE), and the World Health Organization (WHO) are pleased to announce that the focus for this year's World Brain Day is epilepsy.

  • Most common of the chronic serious brain diseases
  • Lack of awareness among public & misperceptions
  • Enormous psychosocial consequences for most people who have epilepsy.
  • Inadequate knowledge among physicians
  • Poor availability of medications in most countries

Videos and more information about World Brain Day

Use of valproate in women and girls

Letter to the EMA (European Medicines Agency) from the ILAE Commission on European Affairs (CEA), ILAE Commission on Medical Therapies, and ILAE Task Force on AED Trials and Regulatory Affairs regarding PRAC recommendations to strengthen the restrictions on the use of valproate in women and girls.
ILAE Letter | EMA PRAC Recommendation

Epilepsy Research Priorities in Europe

European Forum on Epilepsy Research 2013

The European Forum on Epilepsy Research (ERF2013) took place in Dublin from May 26-29, 2013. Its objective was to provide a platform on how to improve the lives of persons with epilepsy in Europe by influencing the future political agenda of the EU.

The ERF 2013 defined objectives and milestones for the epilepsy community 1) how to strengthen epilepsy research, 2) how to reduce the treatment gap, and 3) how to reduce the burden and stigma of epilepsy.

Read ERF 2013 report

European Declaration on Epilepsy

Update - May, 2012

From Emilio Perucca, Co-Chair, ILAE-IBE Joint Task Force for Epilepsy Advocacy in Europe

Parlamento Europeo la Dichiarazione sull'Epilessia
Italian version  Osservare nell'italiano

European Declaration on Epilepsy PASSED in European Parliament (September 15, 2011)

A Written Declaration on Epilepsy was passed in the European Parliament on 15th September 2011. Submitted by the European Advocates for Epilepsy Working Group in collaboration with Epilepsy Advocacy Europe – a joint task force of the International League Against Epilepsy and the International Bureau for Epilepsy, approval of the declaration marks a significant step in the efforts of both groups to increase the quality of life of people with epilepsy. Read complete news release

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